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Healthwise Wales spring 2020 Newsletter

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HealthWise Wales supporting COVID-19 (Coronavirus) research

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Just over a week ago, researchers at Cardiff Metropolitan and Cardiff University launched a survey to find out about the experiences of people living in the UK during the coronavirus COVID-19 pandemic. They’ve received an incredible 5721 completed surveys from HWW participants so far. Thank you so much for sharing your thoughts and experiences. The researchers would love to hear from more people so they can have a greater insight into how the Coronavirus pandemic is affecting you all. If you are over 18 years old, please complete the survey by following the link below.

 

https://covid19attitudes.onlinesurveys.ac.uk/uk-public-experiences-of-the-coronavirus-covid19-pandemic-2

 

The survey will be open until 12 April.

Rectangle: Rounded Corners: Take Part

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At HealthWise Wales (HWW) we value input from our participants and stakeholders. Two years ago, we asked HWW participants to volunteer to participate in our ‘user testing panel’ – to be a sounding board for ideas and to pre-test new features of our website and research platform. We instantly had 156 responses from HealthWise Wales participants who were keen to help us.  The first task offered to the user panel was to review two research modules which used a new data collection method enabling us to evaluate the effectiveness of public information videos. Feedback from the panel was very positive and we launched the modules in October 2018. We are pleased to be able to share the results from these two modules below. Since then, the User Panel have responded to requests for help with naming our twitter hash tag (#WeAreHealthWiseWales), to invitations to volunteer as HWW ambassadors and to pre-test links to our research partner websites (Great Minds dementia platform who offer tests to over 40 year old participants). Thank you for your input and thanks also to those participants who contact us on an ad hoc basis to report glitches with our website. This is very helpful, enabling us to keep things running smoothly.

Increasing public knowledge on side effect reporting

Prescription medicines are tested for effectiveness and safety before reaching patients, but some side-effects may not be observed during the testing process. Often adverse drug reactions (ADRs) are not identified until medications have been used by the wider population. Finding out about these ADRs is an important step in revising prescribing practice and patient information sheets. In the UK, The Medicines and Healthcare Regulatory Authority (MHRA) protects health and patient safety by ensuring that medicines meet appropriate standards of safety, quality and efficacy. The MHRA operates a Yellow Card Scheme through which both members of the public and healthcare practitioners can report suspected side effects. Although the Yellow Card Scheme operates globally, public knowledge of the scheme has been reported to be poor.

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HealthWise Wales worked with the Yellow Card Centre for Wales to evaluate the awareness of Yellow Card reporting by HWW participants and to get feedback on a video about Yellow Card which was produced by the MHRA. This research module was available to HWW participants for six months and 1,606 HWW participants took part by completing a questionnaire about their knowledge of Yellow Card before and after watching the video.

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What we found:

 

Less than a fifth of people who took part in the survey were aware of the Yellow Card Scheme before watching the video. Of those who did know about Yellow Card, 35% had a healthcare background. After watching the video 84% of participants reported understanding what the Yellow Card Scheme was about and 82% said they would be confident to use it. Most participants thought that the video was informative. Some participants suggested that different methods of reporting adverse reactions to medication should be available so that both younger and older people can report ADRs easily.

 

To learn more about how the Yellow Card Scheme collects information on suspected problems or incidents visit the Yellow Card Centre Wales website (https://www.awttc.org/yccwales).

 

A summary of findings from this project is available on the HealthWise Wales website (https://www.healthwisewales.gov.wales/files/Yellow-Card-abstract_260220.pdf).

Raising public awareness about the approval of medicines

 

Did you know that the public can influence the approval of new medicines for use in Wales?  In this study HWW worked with the All Wales Medicines Strategy Group (AWMSG) and the All Wales Therapeutics and Toxicology Centre (AWTTC) to assess public awareness of how new medicines get approved for use in the NHS and to evaluate an information video about how to get involved.

 

Participants completed a questionnaire about the medicines approval process and the role of the All Wales Medicines Strategy Group (AWMSG). Then, they watched the patient video and were asked to complete a second questionnaire.

 

The study showed that participants thought that it is important to have an independent body to advise Welsh Government on which medicines should be available in Wales, however, very few knew how new medications are approved in Wales. After watching the video, 72% said they knew what the role of AWMSG was and over 50% said they would consider getting involved in the assessment of new medications.

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You can watch the patient video from the All Wales Therapeutics and Toxicology Centre (AWTTC) website which gives information about access to medicines in Wales (https://www.awttc.org/pams).

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You can visit the All Wales Medicines Strategy Group (AWMSG) website to learn more about how to get involved with the Patient and Public Interest Group (http://www.awmsg.org/awmsgonline/patient.html).

 

A summary of findings from this project is available on the HealthWise Wales website (https://www.healthwisewales.gov.wales/files/AWMSG-Abstract_260220.pdf).

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HealthWise Wales has also collaborated with researchers from universities, including Cardiff University and Cardiff Metropolitan University, as well as professionals from different health boards across Wales. HWW was used as a platform to recruit participants for studies that would otherwise be unable to reach people living in diverse areas across Wales. The results of our collaboration with Consultant Dermatologist Rachel Abbot from the Department of Dermatology in University Hospital Wales are presented below.

Sun protection behaviour in Wales

Failing to protect the skin against sun damage through applying sun cream and exposing the skin to damaging rays e.g. using sun beds can both be harmful to the skin. Despite several campaigns to raise awareness of sun-safe behaviours to protect against skin cancer, a lot of people do not know how to protect themselves from harmful sun exposure. This study aimed to understand the public’s knowledge of sun exposure safety and inform future skin cancer prevention strategies.

 

Participants completed a questionnaire on sun care knowledge, sunburn and attitudes to sunbed use. The questionnaire was developed through the collaboration of the HWW team and professionals from the Cardiff and Vale University Health Board.

 

What we found:

 

Of the 6,386 participants who responded to this study, most reported using sunscreen, wearing a hat or staying in the shade as means of sun protection. However, only one in four reported daily use of sunscreen and over half of the participants reported a sunburn in the previous year. Additionally, participants who used a sunbed for tanning suggested that it made them feel healthier or attractive, with younger people being more likely to say so, despite the danger sunbed use may pose.

 

Although people are aware of the benefits of sun protection, expanding the use of sunscreen and reducing the use of sunbeds needs to be prioritized in future policies by the Department of Health.

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The HealthWise Wales team doesn’t only facilitate research for other researchers and professionals, but also conducts its own research studies exploring key issues that can have a negative effect on the health of the population. One such ongoing project is focusing on carers, with over a quarter of respondents identifying as such.

Mental health and unhealthy behaviours among carers

Caring for a loved one such as a family member, friend or neighbour can be a demanding role, with lots of responsibilities such as dressing, washing and help with daily tasks, increasing and disrupting one’s own daily routines.  Carers may experience distress and poorer mental health due to their caring duties, but often remain hidden from services that could support them. Looking after another adult can also take up a lot of their time and result in neglecting their own wellbeing. Through this research study, we wanted to find out how carers’ day-to-day health behaviours differ from non-carers and how their duties might affect their physical and mental health.

 

HealthWise Wales collects self-report information on the number of hours of caring a participant provides for family members, friends or neighbours, as well as on mental well-being and diagnosis. Information on self-reported lifestyle behaviours such as smoking, unhealthy eating and physical inactivity are also collected.

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What we found:

 

More carers experience common mental health conditions (CMDs) than non-carers. The quantity of caring is important. Carers who have given up work to care for someone and those who provide care for more than 20 hours per week, report poorer mental health compared to other carers. These findings suggest that caring can negatively affect a carer’s life, especially their mental health, highlighting the need to better support their mental health needs.

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Carers generally reported more unhealthy lifestyle behaviours than non-carers. Carers with more of these unhealthy behaviours also had worse mental health. The time and energy a carer devotes to daily caring activities could help explain this neglect of personal health. Breaking the circle of unhealthy behaviours and poor health by helping carers get the support they need could make a difference in the lives of both carers and their loved ones.

 

Results from this work have been published in the Lancet (https://www.sciencedirect.com/science/article/pii/S0140673619328892?via%3Dihub) and the International Journal of Population Data Science (https://ijpds.org/article/view/1215)

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You can unsubscribe from further communications at any time, by emailing us at [email protected]

For the full details of our data protection policy, please visit: www.healthwisewales.gov.wales/data/

 

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Doeth am Iechyd Cymru yng nghefnogi ymchwil COVID-19 (Coronafeirws)

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Ychydig dros wythnos yn ôl, lansiwyd ymchwilwyr o Brifysgol Fetropolitan Caerdydd a Phrifysgol Caerdydd arolwg i ddysgu am brofiadau pobl sy’n byw yn y DU yn ystod y pandemig coronafeirws COVID-19. Yn anhygoel, maent wedi derbyn 5721 o ymatebion hyd yn hyn. Diolch yn fawr i chi am rannu eich meddyliau a’ch profiadau. Mae’r ymchwilwyr yn awyddus i glywed o fwy o bobl i gael mewnwelediad pellach i mewn i sut mae’r pandemig coronafeirws yn effeithio arnoch chi i gyd. Os ydych yn 18 oed neu hŷn, cwblhewch yr arolwg trwy glicio ar y ddolen isod:

 

https://covid19attitudes.onlinesurveys.ac.uk/uk-public-experiences-of-the-coronavirus-covid19-pandemic-2

 

Bydd yr arolwg ar agor tan 12 Ebrill.

Rectangle: Rounded Corners: Cymryd Rhan

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Yn Doeth am Iechyd Cymru (HWW) rydyn ni’n gwerthfawrogi mewnbwn gan ein cyfranogwyr a’n rhanddeiliaid. Ddwy flynedd yn ôl, fe ofynnon ni i gyfranogwyr HWW wirfoddoli i gymryd rhan yn ein ‘panel profi defnyddwyr’ – i fod yn seinfwrdd ar gyfer syniadau ac i brofi nodweddion newydd ein llwyfan ymchwil a’n gwefan ymlaen llaw. Cawson ni 156 o ymatebion ar unwaith gan bobl oedd yn awyddus i’n helpu ni. Y dasg gyntaf a gynigiwyd i’r panel defnyddwyr oedd adolygu dau fodiwl ymchwil oedd yn defnyddio dull newydd o gasglu data, fel bod modd i ni werthuso effeithiolrwydd fideos gwybodaeth i’r cyhoedd. Roedd adborth y panel yn gadarnhaol iawn, ac fe wnaethon ni lansio’r modiwlau ym mis Hydref 2018. Rydyn ni’n falch o fedru rhannu’r canlyniadau o’r ddau fodiwl yma isod. Ers hynny, mae’r Panel Defnyddwyr wedi ymateb i geisiadau am help i enwi ein hashnod trydar (#NiYwDoethAmIechydCymru), i wahoddiadau i wirfoddoli fel llysgenhadon HWW, ac i brofi dolenni i wefannau ein partneriaid ymchwil ymlaen llaw (llwyfan dementia Great Minds sy’n cynnig profiad i gyfranogwyr dros 40 oed). Diolch am eich mewnbwn a diolch hefyd i’r cyfranogwyr hynny sy’n cysylltu â ni ar sail ad hoc i roi gwybod am ddiffygion gyda’n gwefan. Mae hyn o gymorth mawr, yn ein galluogi i gadw pethau mewn trefn.

Cynyddu gwybodaeth gyhoeddus ynghylch rhoi gwybod am sgîl-effeithiau  

 

Mae moddion presgripsiwn yn cael eu profi o ran effeithiolrwydd a diogelwch cyn cyrraedd cleifion, ond mae’n bosib na sylwir ar rai sgîl-effeithiau yn ystod y broses brofi. Yn aml, ni nodir adweithiau niweidiol i gyffuriau (ADRs) nes bod meddyginiaethau wedi cael eu defnyddio gan y boblogaeth ehangach. Mae dysgu am yr ADRs hyn yn gam pwysig at adolygu ymarfer rhagnodi a thaflenni gwybodaeth i gleifion. Yn y Deyrnas Unedig, mae Awdurdod Rheoleiddio Meddyginiaeth a Gofal Iechyd (MHRA) yn amddiffyn iechyd a diogelwch cleifion trwy sicrhau bod moddion yn bodloni safonau priodol o ran diogelwch, ansawdd ac effeithiolrwydd. Mae’r MHRA yn gweithredu Cynllun Cerdyn Melyn sy’n rhoi cyfle i aelodau o’r cyhoedd ac ymarferwyr gofal iechyd roi gwybod am sgîl-effeithiau a amheuir. Er bod y Cynllun Cerdyn Melyn yn gweithredu’n fyd-eang, adroddwyd bod yr wybodaeth gyhoeddus am y cynllun yn wael.

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Bu Doeth am Iechyd Cymru yn gweithio gyda Chanolfan Cerdyn Melyn Cymru er mwyn gwerthuso ymwybyddiaeth o adroddiadau Cerdyn Melyn gan gyfranogwyr HWW ac i gael adborth ar fideo am y Cerdyn Melyn a gynhyrchwyd gan MHRA. Roedd y modiwl ymchwil hwn ar gael i gyfranogwyr HWW am chwe mis, a bu 1,606 o gyfranogwyr HWW yn cymryd rhan trwy gwblhau holiadur am eu gwybodaeth ynghylch y Cerdyn Melyn cyn gwylio’r fideo (ar gael yn Saesneg yn unig) ac wedyn.

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Beth ddarganfuon ni:

 

Roedd llai nag un o bob pump o’r bobl a gymerodd ran yn yr arolwg yn ymwybodol o’r Cynllun Cerdyn Melyn cyn gwylio’r fideo. O’r rhai oedd yn gwybod am y Cerdyn Melyn, roedd gan 35% gefndir gofal iechyd. Ar ôl gwylio’r fideo, adroddodd 84% o’r cyfranogwyr eu bod yn deall beth oedd diben y Cynllun Cerdyn Melyn, a dywedodd 82% y bydden nhw’n hyderus i’w ddefnyddio. Roedd y rhan fwyaf o’r cyfranogwyr yn meddwl bod y fideo’n cynnwys gwybodaeth ddefnyddiol. Awgrymodd rhai cyfranogwyr y dylai gwahanol ddulliau o roi gwybod am adweithiau niweidiol i feddyginiaeth fod ar gael fel bod pobl iau a hŷn yn gallu rhoi gwybod am ADRs yn hwylus.

 

I ddysgu mwy am sut mae’r Cynllun Cerdyn Melyn yn casglu gwybodaeth am broblemau neu ddigwyddiadau yr amheuir eu bod wedi digwydd, ewch i wefan Canolfan Cerdyn Melyn Cymru (https://www.awttc.org/yccwales).

 

Mae crynodeb o’r canfyddiadau o’r prosiect hwn ar gael ar wefan Doeth am Iechyd Cymru (https://www.healthwisewales.gov.wales/files/Yellow-Card-abstract_260220.pdf).

Cynyddu ymwybyddiaeth y cyhoedd ynghylch cymeradwyo meddyginiaethau

 

Wyddech chi fod y cyhoedd yn gallu dylanwadu ar gymeradwyo meddyginiaethau newydd i’w defnyddio yng Nghymru? Yn yr astudiaeth hon bu HWW yn gweithio gyda Grŵp Strategaeth Meddyginiaethau Cymru Gyfan (AWMSG) a Chanolfan Therapiwteg a Thocsicoleg Cymru Gyfan (AWTTC) i asesu ymwybyddiaeth y cyhoedd o sut mae meddyginiaethau newydd yn cael eu cymeradwyo ar gyfer defnydd yn y GIG ac i werthuso fideo gwybodaeth am sut mae bod yn rhan o hyn.

 

Cwblhaodd y cyfranogwyr holiadur ynghylch y broses o gymeradwyo meddyginiaethau a rôl Grŵp Strategaeth Meddyginiaethau Cymru Gyfan (AWMSG).  Yna buon nhw’n gwylio’r fideo i gleifion a gofynnwyd iddyn nhw gwblhau ail holiadur.

 

Dangosodd yr astudiaeth fod cyfranogwyr o’r farn ei fod yn bwysig bod corff annibynnol yn cynghori Llywodraeth Cymru ynghylch pa feddyginiaethau ddylai fod ar gael yng Nghymru, fodd bynnag, ychydig iawn oedd yn gwybod sut caiff meddyginiaethau newydd eu cymeradwyo yng Nghymru. Ar ôl gwylio’r fideo, dywedodd 72% eu bod yn gwybod beth oedd rôl AWMSG, a dywedodd dros 50% y bydden nhw’n ystyried ymwneud ag asesu meddyginiaethau newydd.

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Gallwch chi wylio’r fideo i gleifion o wefan Canolfan Therapiwteg a Thocsicoleg Cymru Gyfan (AWTTC) sy’n cynnwys gwybodaeth am fynediad at feddyginiaethau yng Nghymru (https://www.awttc.org/pams).

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Gallwch chi ymweld â gwefan Grŵp Strategaeth Meddyginiaethau Cymru Gyfan (AWMSG) i ddysgu mwy am sut mae ymwneud â’r Grŵp Budd y Cyhoedd a Chleifion (http://www.awmsg.org/awmsgonline/patient.html).

 

Mae crynodeb o’r canfyddiadau o’r prosiect hwn ar gael ar wefan Doeth am Iechyd Cymru (https://www.healthwisewales.gov.wales/files/AWMSG-Abstract_260220.pdf).

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Mae Doeth am Iechyd Cymru hefyd wedi cydweithio ag ymchwilwyr o brifysgolion, gan gynnwys Prifysgol Caerdydd a Phrifysgol Fetropolitan Caerdydd, yn ogystal â gweithwyr proffesiynol o wahanol fyrddau iechyd ledled Cymru. Defnyddiwyd HWW yn llwyfan i recriwtio cyfranogwyr ar gyfer astudiaethau a fyddai fel arall yn methu cyrraedd pobl sy’n byw mewn ardaloedd amrywiol ledled Cymru. Cyflwynir canlyniadau ein cydweithio â’r Dermatolegydd Ymgynghorol, Rachel Abbot, o Adran Ddermatoleg Ysbyty Athrofaol Cymru, isod.

Ymddygiad amddiffyn rhag yr Haul yng Nghymru

Gall methu â defnyddio eli haul i amddiffyn y croen rhag difrod gan yr haul a gadael i’r croen ddod i gysylltiad â phelydrau niweidiol e.e. defnyddio gwelyau haul, fel ei gilydd fod yn niweidiol i’r croen. Er gwaethaf sawl ymgyrch i gynyddu ymwybyddiaeth o ymddygiad diogel yn yr haul er mwyn amddiffyn rhag canser y croen, nid yw llawer o bobl yn gwybod sut mae amddiffyn eu hunain rhag gormod o haul niweidiol. Nod yr astudiaeth hon oedd deall gwybodaeth y cyhoedd ynghylch diogelwch bod yn yr haul, a llywio strategaeth atal canser y croen i’r dyfodol.

 

Cwblhaodd y cyfranogwyr holiadur am wybodaeth ynghylch gofal yn yr haul, llosg haul ac agweddau at ddefnyddio gwelyau haul. Datblygwyd yr holiadur trwy gydweithrediad y tîm HWW a gweithwyr proffesiynol o Fwrdd Iechyd Prifysgol Caerdydd a’r Fro.

 

Ein canfyddiadau;

 

O’r 6,386 o gyfranogwyr a ymatebodd i’r astudiaeth hon, dywedodd y mwyafrif eu bod yn defnyddio eli haul, yn gwisgo het, neu’n aros yn y cysgod i’w hamddiffyn eu hunain rhag yr haul. Fodd bynnag, dim ond un o bob pedwar ddywedodd eu bod yn defnyddio eli haul bob dydd, a dywedodd dros hanner y cyfranogwyr eu bod wedi cael llosg haul yn ystod y flwyddyn flaenorol. Ar ben hynny, awgrymodd cyfranogwyr a oedd wedi defnyddio gwely haul i gael lliw haul fod hynny’n gwneud iddyn nhw deimlo’n iachach neu’n fwy deniadol, ac roedd pobl iau yn fwy tebygol o ddweud hynny, er gwaethaf peryglon defnyddio gwely haul.

 

Er bod pobl yn ymwybodol o fanteision amddiffyn rhag yr haul, mae angen rhoi blaenoriaeth i ehangu’r defnydd o eli haul a lleihau’r defnydd o welyau haul mewn polisïau gan yr Adran Iechyd i’r dyfodol.

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Nid dim ond hwyluso ymchwil ar gyfer ymchwilwyr a gweithwyr proffesiynol eraill y mae tîm Doeth am Iechyd Cymru, mae hefyd yn cynnal ei astudiaethau ymchwil ei hun, yn edrych ar faterion allweddol sy’n gallu cael effaith negyddol ar iechyd y boblogaeth. Mae un prosiect parhaus o’r fath yn canolbwyntio ar ofalwyr, ac mae dros chwarter yr ymatebwyr yn nodi mai dyna ydynt.

Iechyd meddwl ac ymddygiad nad yw’n iach ymhlith gofalwyr

Gall gofalu am rywun annwyl fel aelod o’r teulu, ffrind neu gymydog fod yn rôl heriol, gyda llawer o gyfrifoldebau fel gwisgo, ymolchi a helpu gyda thasgau beunyddiol, gan ychwanegu at eich trefniadau dyddiol eich hun ac amharu arnynt. Gall gofalwyr brofi trallod a iechyd meddwl gwaelach o ganlyniad i’w dyletsywddau gofalu, ond yn aml nid ydynt yn cael eu gweld gan y gwasanaethau a allai eu cefnogi. Gall gofalu am oedolyn arall fynd â llawer o’u hamser hefyd, a golygu eu bod yn esgeuluso eu llesiant eu hunain. Trwy’r astudiaeth ymchwil hon, roeddem am ddarganfod sut mae ymddygiad iechyd gofalwyr o ddydd i ddydd yn wahanol i eiddo’r rhai nad ydynt yn ofalwyr, a sut gallai eu dyletswyddau effeithio ar eu hiechyd meddyliol a chorfforol.

 

Mae Doeth am Iechyd Cymru yn casglu gwybodaeth hunanadrodd am nifer yr oriau o ofalu mae cyfranogwr yn eu darparu ar gyfer aelodau o’r teulu, ffrindiau neu gymdogion, yn ogystal â llesiant meddyliol a diagnosis. Cesglir gwybodaeth hefyd am ymddygiad ffordd o fyw yr adroddir amdano’n bersonol, er enghraifft smygu, peidio â bwyta’n iach a segurdod corfforol.

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Ein canfyddiadau:

 

Mae mwy o ofalwyr na rhai sydd ddim yn ofalwyr yn profi cyflyrau iechyd meddwl cyffredin (CMDs). Mae swm y gofalu’n bwysig, gan fod gofalwyr sydd wedi rhoi’r gorau i’w gwaith i ofalu am rywun a’r rhai sy’n darparu gofal am fwy nag 20 awr yr wythnos yn dweud bod ganddynt iechyd meddwl gwaelach na gofalwyr eraill. Mae’r canfyddiadau hyn yn awgrymu bod gofalu’n gallu cael effaith negyddol ar fywyd gofalwr, yn arbennig o ran iechyd meddwl, gan amlygu’r angen am sicrhau gwell cefnogaeth i’w hanghenion iechyd meddwl.

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Roedd gofalwyr yn sôn yn gyffredinol am ymddygiad ffordd o fyw oedd yn gyffredinol yn fwy afiach na rhai oedd ddim yn ofalwyr. Roedd gan ofalwyr oedd â mwy o’r arferion ymddygiad afiach hyn iechyd meddwl gwaeth yn ogystal. Gallai’r amser a’r egni mae gofalwr yn eu neilltuo bob dydd i weithgareddau gofalu helpu i esbonio’r esgeuluso yma ar iechyd personol. Gallai torri cylch ymddygiad afiach a iechyd gwael trwy helpu gofalwyr i gael y gefnogaeth angenrheidiol wneud gwahaniaeth ym mywydau gofalwyr a’u hanwyliaid.

 

Cyhoeddwyd canlyniadau o’r gwaith hwn yn y Lancet (https://www.sciencedirect.com/science/article/pii/S0140673619328892?via%3Dihub) a Chyfnodolyn Rhyngwladol Gwyddor Data Poblogaeth (https://ijpds.org/article/view/1215)

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